Spark Autism and JFK Partners

Spark Autism is an online research partnership involving 50,000 individuals with autism and their families. They want to speed up research and advance understanding of autism. They have a ton of resources and are looking for families who would like to participate in research.

JFK Partners at the University of Colorado Anschutz Medical Campus Joins
Launch of SPARK, Nation’s Largest Autism Research Study

Groundbreaking initiative combines web-based registry with DNA analysis to accelerate autism research and speed discovery of treatments, supports

April 21, 2016 – JFK Partners at the CU Anschutz Medical Campus in Aurora, CO today helped launch SPARK, an online research initiative designed to become the largest autism study ever undertaken in the United States. Sponsored by the Simons Foundation Autism Research Initiative (SFARI), SPARK will collect information and DNA for genetic analysis from 50,000 individuals with autism — and their families — to advance our understanding of the causes of this condition and to hasten the discovery of supports and treatments.

JFK Partners is one of a select group of 21 leading national research institutions chosen by SFARI to assist with recruitment. The SPARK effort is being led locally by Susan Hepburn, PhD, Associate Professor, and Director of Research at JFK Partners; Sandra Friedman, MD, MPH, Professor, Director of JFK Partners and section head Developmental Pediatrics at Children’s Hospital Colorado; and Cordelia Robinson Rosenberg, PhD, RN, Professor Pediatrics and Psychiatry.

“SPARK empowers researchers to make new discoveries that will ultimately lead to the development of new supports and treatments to improve lives, which makes it one of the most insightful research endeavors to date, in addition to being the largest genetic research initiative in the U.S.,” says Susan Hepburn, PhD.

Autism is known to have a strong genetic component. To date, approximately 50 genes have been identified that almost certainly play a role in autism, and scientists estimate that an additional 300 or more are involved. By studying these genes, associated biological mechanisms and how genetics interact with environmental factors, researchers can better understand the condition’s causes, and link them to the spectrum of symptoms, skills and challenges of those affected.

SPARK aims to speed up autism research by inviting participation from this large, diverse autism community, with the goal of including individuals with a professional diagnosis of autism of both sexes and all ages, backgrounds, races, geographic locations and socioeconomic situations.

SPARK will connect participants to researchers, offering them the unique opportunity to impact the future of autism research by joining any of the multiple studies offered through SPARK.

The initiative will catalyze research by creating large-scale access to study participants whose DNA may be selectively analyzed for a specific scientific question of interest.

SPARK will also elicit feedback from individuals and parents of children with autism to develop a robust research agenda that is meaningful for them.

Anyone interested in learning more about SPARK or in participating can visit, or call us at 303-724-7366.

 About SPARK
SPARK (Simons Foundation Powering Autism Research for Knowledge) is a national autism research initiative that will connect individuals with a professional diagnosis of autism and their biological family members to research opportunities to advance our understanding of autism. SPARK’s goal in doing so is not only to better understand autism, but to accelerate the development of new treatments and supports.

 SPARK was designed to be easily accessible to the entire autism community and was fashioned with input from adults with autism, parents, researchers, clinicians, service providers and advocates.

Registering for this first-of-its-kind initiative can be done entirely online in the convenience of one’s home and at no cost. DNA will be collected via saliva kits shipped directly to participants. Once the SPARK participant’s family has returned their saliva samples and provided some medical and family history information, the SPARK participant will receive a $50 gift card. SPARK will provide access to online resources and the latest research in autism, which may provide participants and families with valuable information to help address daily challenges.

For researchers, SPARK provides a large, well-characterized cohort of genetic, medical and behavioral data, and will result in cost-savings for researchers by reducing start-up costs for individual studies.

SPARK is entirely funded by the Simons Foundation Autism Research Initiative (SFARI).

About JFK Partners
JFK Partners is an interdepartmental program of the departments of Pediatrics and Psychiatry of the University of Colorado School of Medicine located at the Anschutz Medical Campus in Aurora, Colorado. Designated as Colorado’s University Center of Excellence in Developmental Disabilities (UCEDD) and Leadership Education in Neurodevelopmental Disabilities (LEND) Program, JFK Partners has collaborative relationships with numerous organizations that are a part of Colorado’s developmental disability and special health care needs communities.

 The mission of JFK Partners is to promote the independence, inclusion, contribution, health, and well-being of people with developmental disabilities and special health care needs and their families through consumer, community, and university partnerships. At the core of this mission is a commitment to family and person-centered, community-based, and culturally competent programs and services. This mission is accomplished through the pursuit of excellence in education and training, consultation, technical assistance, direct service, research, program development, policy analysis, and advocacy.

Colorado Home Builder Foundation Ramp Build

The Home Builders Foundation is currently seeking out applications for people needing ramps to be completed during its 2016 Blitz Build, taking place on August 25th, 26th and  27th 2016.

The Blitz Build is an annual event that brings together contractors, remodels and volunteers to build about 15 (possibly more!) ramps for individuals needing access to their homes. Even though the HBF builds ramps year-round, during the Blitz Build event they are able to build so many in just 3 days by mobilizing up to 200 volunteers to complete the work.

If you or someone you know is in need of a ramp, please fill have them fill out the HBF’s application for assistance and return it to the HBF. Note: Any ramp applications received now through June 2016 will be considered for the Blitz Build. Projects need to meet the requisite qualifications and will be reviewed on a first-come, first-surved basis of the completed application.

For questions about the Blitz Build or more information about the Home Builders Foundation, contact 303-551-6721.

The Qualifications for the blitz include:

  • Receptive to interaction with HBF staff, volunteers, and media before, during, and/or after the blitz weekend.
  • Home Owned
  • Available for the ramp to be built during blitz dates
  •  Home in 8-county Denver area
  • Financial Need


Children’s Hospital Events

Here are some updates from Children’s Hospital!

Children’s Hospital Colorado Annual Conference on Language and Learning
Speaker: Ruth Stoeckel, Ph.D. CCC-SLP; Mayo Clinic
Topic: Understanding and Supporting Literacy in Children with Speech-Language Impairment
Date: Monday, April 25, 2016.
Location: Children’s Hospital Colorado, Aurora, CO.  Videolinked to Grand Junction and Pueblo (PLEASE NOTE: Videolink is no longer available in Durango & Montrose)

For More Information & To Register click here.
Early registration deadline is April 4.

Special Speaker Event: Tuesday Tucks Me In: A Look at Hidden Disabilities.
The event promises to be an exhilarating and educational look at hidden disability through one man’s (and his service dog’s) perspective.  Sponsored by the Auraria Student Council for Exceptional Children and funded in part by a grant from the Office of Diversity Initiatives and Inclusion. Where: St. Cajetan’s, Auraria Campus, Denver. When: Monday, April 11th, 6:30 to 8:30 p.m. Cost: $10 suggested donation; money raised will support scholarships to conferences and future professional development events. The flyer is attached to share with others.

Children’s Hospital TBI Research Study for Teens (click for more info)
Children’s Hospital Colorado is recruiting patients for a research study: Coping with Head Injury through Problem Solving (CHIPS).


Free Bowling

The Kids Bowl Free Summer Bowling Program is available in our community and we thought that your family might enjoy this great deal.  Each child receives 2 FREE Games of Bowling Every Day All Summer and last summer over 2,000,000 kids enjoyed this great program.
Here’s How You Can Register Your Children/Family
  1. Go to
  2. Click on the State and then select the bowling center that you’d like to participate at.
  3. Register your children to receive Free Bowling all summer long
  4. Sign up the adults and/or older children for the optional Family Pass which allows up to 4 adult family members including parents, grandparents, older siblings, or an adult babysitter to join in the bowling fun.


P.S. Forward this email on to friends and/or family members that may be interested in participating in this FUN Family Deal!